As I type this I should be getting dressed to take Atti to the hospital for a procedure. It’s nothing terrifying, he’s just getting sedated so they can inject poison into the nerves on his legs.
It really is actually no big thing, especially given what we’ve been through before, but any time you take your child to the hospital, you can’t help but be wracked with fear. I have a lot to say on the subject but no time today to do it, so I’ll get back to you all later. For today, Atti will be put under general anesthesia so that his legs will stay still, and then the doctor will inject Phenol into his nerves to deaden some of the hyperactive signals his muscles are getting that make his legs go spastic. It’s kind of like what Botox does for muscles, this will do for nerves. If we get great results then it means we’ll have some future options, so cross your fingers or say a prayer or hug a tree, whatever you do.
I would try and be hopeful, but I’ll be too busy trying not to weep when I see my little guy sedated. Oh gosh it’s just the worst.
Hugs
Oh I know about the general anesthesia! My son was 4 months old when he had his first surgery. It was so scary watching his doctor carry him to the operating room. And such a relief to see her walking out with a smile when it was over. I hope it's already over for you and Atti and that everything went well.
Hoping you all are resting comfortably…the hospital is the most emotionally draining place.
It's okay, Tresa! I get shots kind of like that, but for an utterly different reason (mine isn't poison either, but it still could kill me…) I feel an e-mail coming on…